Lewy Body, Alzheimer’s,
and Dementia Support
Information. Education. Peer Group Support.
Meets Mondays, 11 am-noon. Senior Center, Montrose Pavilion, Montrose, Colorado. You are also welcome to stay after group and join us for lunch (with RSVP 24-hours prior by calling 970-209-0174).
Group meets: June 6 & 20, July 11 & 25, Aug. 15 & 29, Sept. 12 & 26, Oct. 10 & 24, Nov. 14 & 28, Dec. 12 & 19.
Get Information. Dementia is a symptom (or range of symptoms) caused by disease that impairs cognitive ability. There are many causes for dementia, the most common being Alzheimer’s Disease (AD). [Read facts here]. The 2nd most common form of progressive, incurable dementia (and yet, the most often misdiagnosed) is Lewy Body Dementia (LBD). To learn if LBD might be the correct diagnosis for demenita symptoms, please visit The Lewy Body Dementia Association (LBDA).page that provides an easy-to-understand explanation of the disease: its symptoms, causes, diagnosis criteria, prognosis, and links to more help. For help in understanding AD, it’s prevelance, diagnosis, care and treatments, visit Alzheimer’s Association (ALZ.org).
Get Support. If you are caring for someone with dementia, including AD or LBD, we can help. Call our suppport line, 970-209-0174 or Contact us here. We have experience to share and information provided by the Lewy Body Dementia Association (LBDA), the Alzheimer’s Association (ALZ.org), Mayo Clinic, and other organizations. The important thing to know is that you are not alone! And please tell us a little about your situation and why you might need help.
Caregiver Peer Group meets on dates listed above, in a safe, confidential environment to share experiences and information. When I was in a similar situation, my Caregiver Group was literally a life-saver, for both me and my Careé (the person I was carefor). If you’re not yet ready to share in a group, you are welcome to call for one:one Phone Support. 970-209-0174.
Why I can help. I’ve been there. I have comprehensive and personal caregiving experience. My husband had Lewy Body Dementia (LBD). He was originally mis-diagnosed as having ALS (due to the parkinsonian symptoms), then later mis-diagnosed with AD (based on cognitive impairment). Through extensive research and thanks to LBDA and the Mayo Clinic, I was able to provide enough diagnostic information to his medical providers to achieve an accurate diagnosis: Lewy Body Dementia. This made a huge difference in treatment and helped admit him to full hospice, which provided invaluable assistance. For over 17 years, I cared for my husband at home. Later, I personally supervised and advocated for his care in a skilled nursing facility. In both places, we were helped by (VA-provided) agency caregivers, private-pay caregivers, volunteers, and hospice staff, which included doctors, nurses, social workers, and later, grief counseling. In his final days, my husband was at a Hospice Care Center, where I stayed with him until he passed. For many years, I have also been caregiver and advocate (holding a Medical Power of Attorney) for family members and others in residential and assisted living facilities who suffered from a variety of diseases, including those characterized by dementia. I’ve worked with many personal and professional caregivers including CNAs, RNs, and MDs in a variety of medical situations.
My credentials include a BA with a minor in sociology, MBA coursework, completion of the LBDA Caregiver Support Training and the RCI REACH (Rosalynn Carter Institute Resources Enhancing Alzheimer’s Caregiver Health) program dealing with caregiving for those with dementia. I am a member of the Aging and Disability Resources for Colorado (ADRC) Advisory Board and facilitate a local caregiver support group. I also work with Western Colorado Region 10 Options Counselors, which means lots of regional resources for you. I am the author and public presenter of the Caregiver’s Journey series, and am currently working on a new book about LBD. Read my bio here.
Western Colorado Lewy Body & Dementia Support. 970-209-0174. Or, contact us by email here, and let us know how we can help. You are not alone!