Lewy Body, Alzheimer’s,
and Dementia Support
Get Information. Dementia is a symptom (or range of symptoms) caused by disease that impairs cognitive ability. It is not always caused by Alzheimer’s Disease (AD) and may be Lewy Body Dementia (LBD), the 2nd most common form of progressive, incurable dementia, and yet, the most often misdiagnosed. To better understand LBD, please visit page that provides an easy-to-understand explanation of the disease: its symptoms, causes, diagnosis criteria, prognosis, and links to more help from The Lewy Body Dementia Association (LBDA).
Get Support. If you are caring for someone with dementia, including AD or LBD, please consider joining our support group, Western Colorado Lewy Body, Alzheimer’s, and Dementia Support (WCDS). We meet twice monthly at Montrose Memorial Hospital and will soon have locations in neighboring Ouray and Delta counties. We have experience to share and information provided by the Lewy Body Dementia Association (LBDA), the Alzheimer’s Association (ALZ.org), Mayo Clinic, and other organizations. The important thing to know is that you are not alone! Contact us here to find time and date for WCDS group meetings or about other support groups. And please tell us a little about your situation and why you might need help.
Phone Support. If you’re not ready for group yet, you may call 970-209-0174, our support line for phone support. Or, contact us by email.
Why I can help. I’ve been there. I have comprehensive and personal caregiving experience. My husband had Lewy Body Dementia (LBD). He was originally mis-diagnosed as having ALS (due to the parkinsonian symptoms), then later mis-diagnosed with AD (based on cognitive impairment). Through extensive research and thanks to LBDA and the Mayo Clinic, I was able to provide enough diagnostic information to his medical providers to achieve an accurate diagnosis: Lewy Body Dementia. This made a huge difference in treatment and helped admit him to full hospice, which provided invaluable assistance. For over 17 years, I cared for my husband at home. Later, I personally supervised and advocated for his care in a skilled nursing facility. In both places, we were helped by (VA-provided) agency caregivers, private-pay caregivers, volunteers, and hospice staff, which included doctors, nurses, social workers, and later, grief counseling. In his final days, my husband was at a Hospice Care Center, where I stayed with him until he passed. For many years, I have also been caregiver and advocate (holding a Medical Power of Attorney) for family members and others in residential and assisted living facilities who suffered from a variety of diseases, including those characterized by dementia. I’ve worked with many personal and professional caregivers including CNAs, RNs, and MDs in a variety of medical situations.
My credentials include a BA with a minor in sociology, MBA coursework, completion of the LBDA Caregiver Support Training and the RCI REACH (Rosalynn Carter Institute Resources Enhancing Alzheimer’s Caregiver Health) program dealing with caregiving for those with dementia. I am a member of the Aging and Disability Resources for Colorado (ADRC) Advisory Board and facilitate a local caregiver support group. I also work with Western Colorado Region 10 Options Counselors, which means lots of regional resources for you. I am the author and public presenter of the Caregiver’s Journey series, and am currently working on a new book about LBD. Read my bio here.
Western Colorado Lewy Body & Dementia Support. To sign up for group or ask for phone support, call the WCDS Support line, 970-209-0174. Or, contact us by email here, and let us know how we can help.
You are not alone!
Visit us at the Expo October 26th. We’ll have more information and a chance for you to sign up for WCLBD support. Event includes breakfast, educational breakout sessions, and lunch.
FOR EXPO – Please RSVP for lunch. Call Madison, 970-765-3125.